Patient Involvement

Public-academic partnerships focusing on the United Nations Sustainable Development Goals have gained substantial backing from diverse stakeholders. The need for a fresh evidence-based medicine (EBM) approach is evident for the integration of patient and public insights in health research. Prioritizing shared decision-making principles, respecting patient viewpoints, and involving community participation in evidence creation are key strategies to elevate the effectiveness of EBM in healthcare.

Meeting Helsinki 2024 Requirements: A Guide to Your Research Ethics Committee Application Securing approval from a Research Ethics Committee (REC) or an Institutional Review Board (IRB) is a critical milestone for any scientific project. However, the rules governing this process have recently shifted.  I t's what every reviewer looks for in a proposal: community engagement and research integrity . To break down exactly what these changes mean and how you can seamlessly incorporate them into your protocol, Professor Khalid Khan (Distinguished Investigator at the University of Granada) sat down with Professor Aurora Bueno , Chair of the Research Ethics Committee in Granada. Here is how you can address the four fundamental ethical principles under the new Helsinki 2024 standards.   1. Respect for Persons and Autonomy Informed consent is no longer just a bureaucratic paperwork exercise. It now requires meaningful citizen participation right from the design phase. The Key Shift: ...

A post by Professor Khalid Khan and Dr Naomi Cano in Spanish on patient and public involvement in clinical trials of lifestyle intervention for chronic disease.

The Human Research Ethics Committee, or the Institutional Review Board (IRB), plays a crucial role in approving research protocols for human studies. This body is dedicated to safeguarding the rights, dignity, safety, and well-being of research participants. Upholding ethical standards, the IRB ensures that research is conducted with the utmost respect and consideration for those involved. #IRB #REC #Consent #Researchethics

Professor Khalid Khan established the CROWN international initiative, bringing together journal editors worldwide, to harmonise outcome reporting in women’s health research. It addressed the widespread, unwarranted variation in reporting of outcomes which leads to research waste. This problem also makes a comparison between and combination of results across studies difficult, if not impossible. As a result, there can be difficulties in synthesising evidence to generate recommendations for clinical practice which is detrimental to the healthcare provision. The Initiative has over 80 member Journals. The initiative is to improve the standard of future research by encouraging the development, use and dissemination of core outcomes sets. It was supported by the BMA Strutt and Harper grant in 2015 awarded to Dr Natalie Cooper and Professor Khan, both featured in the video. CROWN’s originally published objectives, have been re-published by over 50 journals, and it is known to have catapulte...